Saturday, June 18, 2011

Tomorrow marks 6 months with Mia!

It's hard and easy to believe that Mia has been with us for 6 months now.  She has changed so much in the past 6 months.  Mia's english is coming around at amazing speed and she communicates in sentences with us now.  When it Mia was upset in the past she would shut down and refuse to speak (which was frustrating for all of us), but now she'll tell us what's wrong, and is always quick to tattle on her brothers!

Mia loves to swim and be outside.  She likes to draw and color.  She is counting to 10 consistently now and knows about 1/2 of her primary colors.  The most important thing about Mia is that she is so happy... 99% of the time, and this is no exaggeration.  She plays, laughs, runs, and is very snuggly.  Every day when she gets dressed she says "I'm a pretty princess!" She definitely is the princess in this house.  When she hasn't annoyed them, Jacob and Logan spoil her, play with her, and carry her around.  But the one she has completely wrapped around her finger is her daddy!  In Matt's eyes Mia can do no wrong, and he admits that he has trouble disciplining her... it's actually really cute.  The boys have been out of school for 2 weeks now and this is their daily routine.... ride, swim, ride, swim, etc...  They are having a nice summer and I'm glad to have them home.  Matt and I continue to work opposite shifts to care for the kids.




Mia and I went to the cardiologist on Thursday for a follow up.  Mia is doing well at this time, but her body will need another surgery before the year is up.  Her first surgery shunted an artificial tube from her right ventricle to her pulmonary artery.  Since her pulmonary artery to the right lung is blocked, it was under high amounts of pressure.  Now, all of her vessels could be under that pressure and the ventricle heals.  And the question is will it heal, and are the other larger vessels that her body created to compensate growing or scarred, useful or useless.  The uncertainty of her medical health is unnerving, and her unknown life expectancy is just as saddening.  I find myself at times looking at her and welling up with tears.  I know that she has a better life than she did in the orphanage and that Matt and I are working to give her the best life that she can possibly have.  I force myself to believe that she will have a long and prosperous life, and will continue to shock and amaze her medical team. 

1 comment:

Sue said...

Mia is so beautiful! wishing your family the best as you go through these medical procedures.
Sue